It's been 2 weeks since Steve stopped taking the steroid with his pomalidomide. The cramps have almost completely stopped (a few hand cramps and one minor foot cramp)! This has resulted in both of us sleeping better, he's even stopped sleeping in the recliner! Nice to have his warm body next to me, especially in this weather!
Every night Steve makes notes on how he felt during the day and what symptoms he experienced. There is no rhyme or reason to it, but some days he feels pretty good, and on others he can feel lousy. He told me last night that for the first time he feels more like he use to, before he started the new treatment. That was our new normal and it was actually pretty good.
If he can continue with the pomalidomide without the steroid, then maybe life won't be as difficult as we experienced in Sept, Oct & Nov, and maybe we can start planning some short trips, have the grandkids stay with us, who knows!
We are still waiting for the test results from our last visit. Last time his m-spike was 0.9. We go back on 1/2/15…..pray the absence of the steroids don't result in the pomalidomode becoming ineffective.
Merry Christmas to everyone and don't forget to tell others about Jesus and his sacrifice for us!
Pray for Julie, Mike, Jim, Natalie, Rosemary, Skip, Matt, Marcie, Earl, Mary, Stephanie and the Persecuted Church.
Love,
From a very grateful christian and wife to Mr. L,
AKA
Deanna
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