Well in essence that is what the Comprehensive Care Clinic is all about. Not knowing what to expect led us to believe the worst, that maybe Steve would not be referred to UCLA. The CCC is a group that was put together over a year ago and are always part of a patients care once they have been referred for a transplant of any kind.
We talked about what steps Steve would like to take next, the importance of an Advanced Directive and many other things. The important thing is Steve left there feeling really good about the doctor and what we learned.
We are still waiting for the referral to go to UCLA to be approved. In the mean time it's just living as usual……..waiting on the Lord. No better place to be.
Please keep praying for Natalie, Julie, Bethany and her Mom Tana and for my sister Rosemary.
Love always,
Deanna
Thursday, July 24, 2014
Monday, July 21, 2014
New Process for Steve
Were not sure if the new process is because of the insurance change or because Steve's relapse starts something new, but today we are going to a new doctor. Steve's "care" will now be coordinated with in a comprehensive care program through Health Care Partners.
Instead of his local doctor being able to refer him directly to UCLA, we have to go through the CCP. Steve's appointment is at 3:00. We are not to sure what to expect.
On a good note, his bone survey came back as stable. No changes!!! Although we did find out something that we either missed or were never told. Steve has some lesions in his skull. They don't hurt and their not really a bad thing, it was just a little unnerving to find out.
Well…..we are leaving now to go see the new Doctor. Keep us in prayer!
Love Deanna
Instead of his local doctor being able to refer him directly to UCLA, we have to go through the CCP. Steve's appointment is at 3:00. We are not to sure what to expect.
On a good note, his bone survey came back as stable. No changes!!! Although we did find out something that we either missed or were never told. Steve has some lesions in his skull. They don't hurt and their not really a bad thing, it was just a little unnerving to find out.
Well…..we are leaving now to go see the new Doctor. Keep us in prayer!
Love Deanna
Thursday, July 3, 2014
It's Back
Yesterday Steve and I went to see his oncologist for the bone marrow biopsy results. While we didn't hear what we had hoped for, what we did hear was not as bad as it could have been.
There was a change in chromosome 20 and this isn't that big of a deal. If chromosome 17 had been affected then we would have a lot more to worry about.
The cancer levels in his bone marrow is at 15-18%. If you remember after his transplant the cancer levels had gone to zero. So Steve is being referred to UCLA once again, and he will see the doctor who was in change of his SCT. Revlimid is no longer working as it did so a new regimen will be prescribed.
Steve told a few months ago something very surprising. He said if he had to have another stem cell transplant he would do it. This completely surprised me after watching him go through it the first time.
But then its like a women who forgets the pain of childbirth because its replaced with the joy she experiences in the relationship she has with her new baby. She doesn't think about the pain when she decides to have another baby. She thinks of the joy the new child will bring.
Steve's forgotten the "experience" of the transplant because it's been replaced with the experience of living well again.
We are stronger today then we were 5 years ago and I give God the glory for what he has done in and through us. But still, pray for us, please.
There was a change in chromosome 20 and this isn't that big of a deal. If chromosome 17 had been affected then we would have a lot more to worry about.
The cancer levels in his bone marrow is at 15-18%. If you remember after his transplant the cancer levels had gone to zero. So Steve is being referred to UCLA once again, and he will see the doctor who was in change of his SCT. Revlimid is no longer working as it did so a new regimen will be prescribed.
Steve told a few months ago something very surprising. He said if he had to have another stem cell transplant he would do it. This completely surprised me after watching him go through it the first time.
But then its like a women who forgets the pain of childbirth because its replaced with the joy she experiences in the relationship she has with her new baby. She doesn't think about the pain when she decides to have another baby. She thinks of the joy the new child will bring.
Steve's forgotten the "experience" of the transplant because it's been replaced with the experience of living well again.
We are stronger today then we were 5 years ago and I give God the glory for what he has done in and through us. But still, pray for us, please.
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| Cancer is big but our God is Bigger! |
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