Steve had a somewhat better month and the only change that was made was to stop the steroid (after my inquiring of the possibility) to help with his moods, sleep deprivation and other unpleasant side effects he has been experiencing. Our first thought was maybe the dose could be reduced…..but the Clinical Trial protocols require a complete absence of the drug for a time and then reintroduce it at a lower dose.
We did this only because he has had such good results so far.
Now hopefully this will make for a more pleasant Christmas celebration!
Unfortunately the worst side effect he gets is not from the steroid but from the Pomalidomide. They can be so painful, and take so much out of him. The most unpleasant episode happened on Thanksgiving. At one point his jaw locked up for a brief time. Very scary!
We are hopeful the lab work done today will reveal another drop in his m-spike, which we won't know for another 7-10days. Prayerfully a big drop!
Thank you so much for your prayers and the love you have shown us. We are blessed to be a part of God's family, through the work of his son Jesus Christ.
Have a wonderful Christmas, we love you all.
Here is Steve with his early Birthday/Christmas present. I hardly ever see him anymore!
 |
| I never have to leave my recliner again! |
Please pray for Julie, Rosemary, Griselda, Michael, Jim, Jim, Natalie, Rosemarie, Skip, Marcie, Earl and Mary.
Love,
The most blessed wife
Mrs. L
No comments:
Post a Comment