Hi everyone. Sorry to take so long in updating you. Steve continues in his recovery. He is more active and so much stronger then he was. He's gained all of his weight back and feels pretty good most of the time. He still struggles with neuropathy and body pain unrelated to it. We saw his local oncologist last week and she was pleased to see how well he looked and felt. She is referring him to a neurologist for nerve testing and pain management and has scheduled his post-transplant bone marrow biopsy for this Thursday.
His m-spike has been steady at 1.0 for the past 2 months. In the world of myeloma a low, steady number is a okay. Once we get the results of the biopsy we'll know what his true cancer burden is. We are praying for a low, low number. The plan is to start him on a maintenance drug that will hopefully keep his myeloma under control, preventing any further damage to his body. The drug the oncologist from UCLA has recommended is Revlimid. His local oncologist is not in full agreement with him but is willing to give it a try. She is reluctant because of the severe rash he developed the first time he was on it. This time maybe his body will be able to tolerate it at a lower dose. The alternative would be a steroid called dexamethasone. Both carry risks and will have to be monitored closely.
Now, how are we doing? To be honest we are in a very strange place. Steve is not looking forward to the biopsy and he is not sure why. I on the other hand am eager to know the results. I think for me knowing this information helps my mind to adjust to the direction we need to go. If that makes sense. But since the transplant I have been unable to "bounce back" like I usually do. Please pray for rejuvenation for both of us, that we not grow weary but remain steadfast, with our eyes continuously on the Lord.
Please pray for little Hayden, his mom and dad, little Haven, Natalie, Tim, Ray and Kryslynn.
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