Monday, November 16, 2015

Latest Update

Hello All……Since my last post things have been a bit rough. Once the edema went away, Steve began experiencing some scary symptoms.

While we were in Tahoe he had what we would describe as angina attacks. When we got back home his symptoms changed to fevers, low oxygen levels, night sweats, shortness of breath. We felt it was his heart and so we first the doctors and then to the ER. They ran all kinds of test to rule out any heart or arterial problems, as well as more lung tests and they could not find any cause. So they chalked it up to a viral infection.

But…once he resumed taking his pomalidomide the fevers, low oxygen (81-82), shortness of breath and night sweats resumed. This led is to believe the pomalidomide is the reason…I even found a study on the Internet supporting our theory.

So I had Steve stop the pomalidomide on Friday night, 3 days a go……Since then his oxygen has improved, then have been no fevers, his stamina has improved and no more night sweats.

We believe it it time to change treatments but the doctor wants to send him to a pulmonologist first to rule out another cause. Which  is fine…..but Steve will stay off the pomalidomide until we know otherwise. Please pray for wisdom for the doctor and that if there is any new health issue that the doctors will find it. Most importantly we need guidance on what the next treatment should be.

Thank for your prayers and please continue to pray for Julie, Cheryl, Griselda, Natalie, Maricella, Doris, Jim and Tana.

Love Always…

Mrs. L

Papa & Rebekah




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