Friday Nights: He takes the steroid, dexamethasone. Sleeps about 6 hrs without cramps, with cramps maybe 4.
Saturday: High levels of energy, very talkative, distracted easily, and mood can turn on a dime. Not the time to make jokes that would easily be funny on say Thursday or Friday! Sleeps about 4 hours.
Sunday: Feels great early in the morning, but by 11am he is fatigued and not feeling his best.
Monday: Very dizzy throughout the day, bouts of fatigue, but he presses on. Sleeps about 5 to 6 hours.
Tuesday: Same as Monday.
Wednesday: Same as Monday but energy increases a bit.
Thursday and Friday: The 2 best days of the week. He feels pretty good and gets more rest. He's back to his "old" self.
For the past 2 weeks he has been experiencing severe edema in his right foot and ankle and moderately in his left foot and ankle. He saw his doctor on Thursday about this and had an EKG, Chest X-ray, Urinalysis, Vials of blood taken for a myriad of different tests. We are hoping to find out the cause of the edema.
He started experiencing swelling right after his bout with pneumonia back in March. But never this bad.
His M-Spike went from 1.2 in June to 1.3 in July and down to 1.1 for August. Not the greatest results but his disease is stable and that's not a bad place to be.
In July we welcomed our third grandchild, Rebekah!! And we had the pleasure of Gabriel and Abigale staying with us for a week!
Please keep praying for Steve and those I listed below. And if you would add my son Daniel to your list. On September 21st he begins 16 weeks of training at the Academy to become a Corrections Officer with the state of California. It will be very arduous for him and hard on his wife and kids, who will see less of him during this time.
Thanks so much and God Bless you richly!
Julie, Natalie, Jim, Doris, Maricella, Wint, Cheryl, & Tana
Love Deanna
AKA Mrs. L
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